{"id":14119,"date":"2020-12-14T17:56:00","date_gmt":"2020-12-14T10:56:00","guid":{"rendered":"https:\/\/www.xinwengao.com\/cn\/pr\/2020121417560014119"},"modified":"2020-12-15T09:15:33","modified_gmt":"2020-12-15T01:15:33","slug":"esperare-foundation-%e4%b8%8e-pierre-fabre-%e6%90%ba%e6%89%8b%e7%a0%94%e5%8f%91%e5%92%8c%e6%8e%a8%e5%b9%bf%e4%b8%80%e7%a7%8d%e9%92%88%e5%af%b9-xlhed-%e7%9a%84%e5%bc%80%e5%88%9b%e6%80%a7%e6%b2%bb","status":"publish","type":"post","link":"https:\/\/www.xinwengao.com\/cn\/pr\/2020121417560014119","title":{"rendered":"EspeRare Foundation \u4e0e Pierre Fabre \u643a\u624b\u7814\u53d1\u548c\u63a8\u5e7f\u4e00\u79cd\u9488\u5bf9 XLHED \u7684\u5f00\u521b\u6027\u6cbb\u7597\u65b9\u6cd5"},"content":{"rendered":"

XLHED \u662f\u4e00\u79cd\u9700\u8981\u8fdb\u884c\u51fa\u751f\u524d\u6cbb\u7597\u5e72\u9884\u7684\u7f55\u89c1\u9057\u4f20\u6027\u76ae\u80a4\u75c5<\/span><\/p>\n\n\n\n
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\u745e\u58eb\u65e5\u5185\u74e6\u548c\u6cd5\u56fd\u5361\u65af\u7279\u5c142020\u5e7412\u670814\u65e5 \/\u7f8e\u901a\u793e\/ — EspeRare Foundation \u548c Pierre Fabre group \u4e8e\u4eca\u5929\u5ba3\u5e03\uff0c\u53cc\u65b9\u5df2\u5c31 ER-004 \u7684\u5f00\u53d1\u548c\u5546\u4e1a\u5316\u8fbe\u6210\u4e86\u8bb8\u53ef\u548c\u5f00\u53d1\u5408\u4f5c\u534f\u8bae\uff0cER-004 \u662f\u4e00\u79cd\u9488\u5bf9 XLHED\uff08X \u8fde\u9501\u5c11\u6c57\u6027\u5916\u80da\u5c42\u53d1\u80b2\u4e0d\u826f\uff09\u7684\u51fa\u751f\u524d\u6cbb\u7597\u65b9\u6cd5\uff0cXLHED \u662f\u4e00\u79cd\u7f55\u89c1\u7684\u3001\u4f7f\u4eba\u865a\u5f31\u7684\u5148\u5929\u6027\u75be\u75c5\u3002\u4e0b\u4e00\u6b21\u4e34\u5e8a\u7814\u7a76\u9884\u8ba1\u4e8e 2021 \u5e74\u5f00\u59cb\uff0c\u76ee\u6807\u5c06\u662f\u5bf9\u53ef\u80fd\u4e8e 2026 \u5e74\u524d\u9996\u4e2a\u83b7\u6279\u7684 XLHED \u7597\u6cd5\u8fdb\u884c\u7504\u522b\u548c\u6ce8\u518c\u3002  <\/p>\n

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\u6839\u636e\u534f\u8bae\u6761\u6b3e\u89c4\u5b9a\uff0cEspeRare \u548c Pierre Fabre Group \u4f1a\u53ec\u96c6\u53cc\u65b9\u76f8\u5e94\u4e13\u5bb6\u5171\u540c\u7814\u53d1 ER-004\u3002Pierre Fabre group \u5c06\u62e5\u6709\u5168\u7403\u72ec\u5bb6\u7814\u53d1\u3001\u751f\u4ea7\u548c\u8425\u9500 ER-004 \u7684\u6743\u5229\u3002 <\/p>\n<\/p>\n

XLHED \u662f\u4e00\u79cd\u5f71\u54cd\u5916\u80da\u5c42\u7ed3\u6784\u7684\u9057\u4f20\u75c5\uff0c\u5916\u80da\u5c42\u662f\u80da\u80ce\u65e9\u671f\u5f62\u6210\u7684\u4e09\u4e2a\u521d\u7ea7\u80da\u5c42\u4e2d\u6700\u5916\u5c42\u90e8\u5206\uff0c\u76ae\u80a4\u53ca\u5176\u9644\u5c5e\u7269\u5747\u4ece\u5916\u80da\u5c42\u884d\u751f\u800c\u6765\u3002ER-004 \u5f00\u521b\u4e86\u4e00\u79cd\u5bab\u5185\u7597\u6cd5\uff0c\u65e8\u5728\u53d6\u4ee3\u5185\u751f\u7684\u8715\u76ae\u7d20 A1 (EDA1) \u7684\u529f\u80fd\uff0c\u540e\u8005\u662f\u80ce\u513f\u5916\u80da\u5c42\u7ed3\u6784\u6b63\u5e38\u53d1\u80b2\u7684\u5173\u952e\u86cb\u767d\u3002ER-004 \u662f\u4e00\u79cd\u91cd\u7ec4\u3001\u53ef\u6eb6\u6027\u548c\u4eba\u6e90\u5316\u5f62\u5f0f\u7684 EDA1\uff0c\u5355\u7597\u7a0b\u7ed9\u836f\uff0c\u5e76\u5728\u598a\u5a20\u540e\u671f\u901a\u8fc7\u7f8a\u819c\u5185\u6ce8\u5c04\u7ed9\u836f\u3002\u8fd9\u79cd\u65b9\u6cd5\u5df2\u5bf9\u4eba\u7c7b\u8868\u73b0\u51fa\u663e\u8457\u6f5c\u529b\uff0c\u5728\u5fb7\u56fd Erlangen \u5927\u5b66\u533b\u9662\u7531 Holm Schneider \u6559\u6388\u4ee5\u8fd9\u79cd\u65b9\u5f0f\u6cbb\u7597\u7684 3 \u4f8b\u60a3\u8005\u4e2d\uff0c\u60a3\u8005\u6c57\u817a\u529f\u80fd\u5747\u5df2\u6b63\u5e38\u5316\u3002\u300aNew England Journal of Medicine1<\/sup>\u300b\u548c\u300aBritish Journal of Clinical Pharmacology2<\/sup>\u300b\u76f8\u7ee7\u520a\u767b\u4e86\u9996\u6279\u6cbb\u7597\u6548\u679c\uff0c\u300aNature Medicine\u2019s Research Highlights3<\/sup>\u300b\u4e5f\u4e3a\u6b64\u5f00\u8bbe\u4e86\u4e13\u9898\u3002 <\/p>\n

\u201cEsperare <\/i>\u4e0e Pierre Fabre Group <\/i>\u5171\u540c\u7814\u53d1\u8fd9\u9879\u6fc0\u52a8\u4eba\u5fc3\u7684\u9879\u76ee\uff0c\u6211\u4eec\u5bf9\u6b64\u611f\u5230\u65e0\u6bd4\u6fc0\u52a8\u3002\u6211\u4eec\u76f8\u4fe1\uff0c\u4e0e Pierre Fabre <\/i>\u7684\u5408\u4f5c\u5c06\u5f97\u4ee5\u4e3a XLHED <\/i>\u60a3\u8005\u5e26\u6765\u8fd9\u79cd\u7a81\u7834\u6027\u7684\u7597\u6cd5\uff0c\u4f7f\u5176\u7b26\u5408\u6211\u4eec\u4ee5\u60a3\u8005\u4e3a\u4e2d\u5fc3\u7684\u4ef7\u503c\u89c2\u3002\u201d<\/i>EspeRare Foundation <\/b>\u6267\u884c\u8463\u4e8b Caroline Kant <\/b>\u8868\u793a\u3002<\/b><\/p>\n

\u201c\u6211\u4eec\u5f88\u8363\u5e78\u4e0e EspeRare foundation <\/i>\u643a\u624b\u5408\u4f5c\uff0c\u4e3a\u8fd9\u79cd\u8ba9\u4eba\u8870\u5f31\u7684\u75be\u75c5\u627e\u5230\u4e00\u79cd\u6cbb\u7597\u65b9\u6848\uff0c\u8be5\u75be\u75c5\u6bcf\u5e74\u4f1a\u5bf9 500 <\/i>\u540d\u5a74\u513f\u9020\u6210\u5f71\u54cd\u3002\u6211\u4eec\u672c\u6b21\u5408\u4f5c\u7684\u76ee\u7684\u4e0d\u8a00\u800c\u55bb\uff1a\u6211\u4eec\u5bf9\u6bcf\u4e00\u4e2a\u4eba\u7684\u6bcf\u4e00\u6b21\u7167\u6599\uff0c\u90fd\u8ba9\u8fd9\u4e2a\u4e16\u754c\u53d8\u5f97\u66f4\u52a0\u7f8e\u597d\u201d\u3002Pierre Fabre Group <\/b><\/i>\u9996\u5e2d\u6267\u884c\u5b98 Eric Ducournau <\/i><\/b>\u8bc4\u8bba\u8bf4\u3002<\/i><\/p>\n

EspeRare \u662f\u4e00\u5bb6\u975e\u8425\u5229\u673a\u6784\uff0c\u81f4\u529b\u4e8e\u63a2\u7d22\u7f55\u89c1\u75c5\u7684\u7597\u6cd5\u3002\u800c Pierre Fabre Group \u96b6\u5c5e\u4e8e Pierre Fabre Foundation\uff0c\u662f\u4e00\u5bb6\u62e5\u6709\u8fd1 60 \u5e74\u884c\u4e1a\u7ecf\u9a8c\u7684\u5927\u578b\u533b\u7597\u673a\u6784\u3002\u53cc\u65b9\u5171\u540c\u52aa\u529b\u6cbb\u7597\u60a3\u8005\uff0c\u4e3a\u5bfb\u6c42\u53ef\u6539\u53d8\u60a3\u8005\u751f\u6d3b\u7684\u521b\u65b0\u6cbb\u7597\u65b9\u6848\u800c\u8d21\u732e\u81ea\u5df1\u7684\u533b\u5b66\u4e13\u957f\u3002\u672c\u5408\u4f5c\u534f\u8bae\u5c06 EspeRare \u4e0e Pierre Fabre \u5171\u540c\u5f00\u62d3\u6cbb\u7597\u65b9\u6848\u7684\u76ee\u6807\u5177\u4f53\u5316\uff0c\u4e3a\u53d7\u7f55\u89c1\u75c5\u5f71\u54cd\u5e76\u7f3a\u5c11\u533b\u7597\u670d\u52a1 \u7684\u60a3\u8005\u63d0\u4f9b\u5e2e\u52a9\u3002<\/p>\n","protected":false},"excerpt":{"rendered":"

XLHED \u662f\u4e00\u79cd\u9700\u8981\u8fdb\u884c\u51fa\u751f\u524d\u6cbb\u7597\u5e72\u9884\u7684\u7f55\u89c1\u9057\u4f20\u6027\u76ae\u80a4\u75c5   \u745e\u58eb\u65e5\u5185\u74e6\u548c\u6cd5\u56fd\u5361\u65af\u7279\u5c142020\u5e7412\u670814\u65e5 \/\u7f8e\u901a\u793e\/ — EspeRare Foundation \u548c Pierre Fabre group \u4e8e\u4eca\u5929\u5ba3\u5e03\uff0c\u53cc\u65b9\u5df2\u5c31 ER-004 \u7684\u5f00\u53d1\u548c\u5546\u4e1a\u5316\u8fbe\u6210\u4e86\u8bb8\u53ef\u548c\u5f00\u53d1\u5408\u4f5c\u534f\u8bae\uff0cER-004 \u662f\u4e00\u79cd\u9488\u5bf9 XLHED\uff08X \u8fde\u9501\u5c11\u6c57\u6027\u5916\u80da\u5c42\u53d1\u80b2\u4e0d\u826f\uff09\u7684\u51fa\u751f\u524d\u6cbb\u7597\u65b9\u6cd5\uff0cXLHED \u662f\u4e00\u79cd\u7f55\u89c1\u7684\u3001\u4f7f\u4eba\u865a\u5f31\u7684\u5148\u5929\u6027\u75be\u75c5\u3002\u4e0b\u4e00\u6b21\u4e34\u5e8a\u7814\u7a76\u9884\u8ba1\u4e8e 2021 \u5e74\u5f00\u59cb\uff0c\u76ee\u6807\u5c06\u662f\u5bf9\u53ef\u80fd\u4e8e 2026 \u5e74\u524d\u9996\u4e2a\u83b7\u6279\u7684 XLHED \u7597\u6cd5\u8fdb\u884c\u7504\u522b\u548c\u6ce8\u518c\u3002       \u6839\u636e\u534f\u8bae\u6761\u6b3e\u89c4\u5b9a\uff0cEspeRare \u548c Pierre Fabre Group \u4f1a\u53ec\u96c6\u53cc\u65b9\u76f8\u5e94\u4e13\u5bb6\u5171\u540c\u7814\u53d1 ER-004\u3002Pierre Fabre group \u5c06\u62e5\u6709\u5168\u7403\u72ec\u5bb6\u7814\u53d1\u3001\u751f\u4ea7\u548c\u8425\u9500 ER-004 \u7684\u6743\u5229\u3002  XLHED \u662f\u4e00\u79cd\u5f71\u54cd\u5916\u80da\u5c42\u7ed3\u6784\u7684\u9057\u4f20\u75c5\uff0c\u5916\u80da\u5c42\u662f\u80da\u80ce\u65e9\u671f\u5f62\u6210\u7684\u4e09\u4e2a\u521d\u7ea7\u80da\u5c42\u4e2d\u6700\u5916\u5c42\u90e8\u5206\uff0c\u76ae\u80a4\u53ca\u5176\u9644\u5c5e\u7269\u5747\u4ece\u5916\u80da\u5c42\u884d\u751f\u800c\u6765\u3002ER-004 \u5f00\u521b\u4e86\u4e00\u79cd\u5bab\u5185\u7597\u6cd5\uff0c\u65e8\u5728\u53d6\u4ee3\u5185\u751f\u7684\u8715\u76ae\u7d20 A1 (EDA1) \u7684\u529f\u80fd\uff0c\u540e\u8005\u662f\u80ce\u513f\u5916\u80da\u5c42\u7ed3\u6784\u6b63\u5e38\u53d1\u80b2\u7684\u5173\u952e\u86cb\u767d\u3002ER-004 \u662f\u4e00\u79cd\u91cd\u7ec4\u3001\u53ef\u6eb6\u6027\u548c\u4eba\u6e90\u5316\u5f62\u5f0f\u7684 EDA1\uff0c\u5355\u7597\u7a0b\u7ed9\u836f\uff0c\u5e76\u5728\u598a\u5a20\u540e\u671f\u901a\u8fc7\u7f8a\u819c\u5185\u6ce8\u5c04\u7ed9\u836f\u3002\u8fd9\u79cd\u65b9\u6cd5\u5df2\u5bf9\u4eba\u7c7b\u8868\u73b0\u51fa\u663e\u8457\u6f5c\u529b\uff0c\u5728\u5fb7\u56fd Erlangen \u5927\u5b66\u533b\u9662\u7531 Holm Schneider \u6559\u6388\u4ee5\u8fd9\u79cd\u65b9\u5f0f\u6cbb\u7597\u7684 3 \u4f8b\u60a3\u8005\u4e2d\uff0c\u60a3\u8005\u6c57\u817a\u529f\u80fd\u5747\u5df2\u6b63\u5e38\u5316\u3002\u300aNew England Journal of Medicine1\u300b\u548c\u300aBritish Journal of Clinical Pharmacology2\u300b\u76f8\u7ee7\u520a\u767b\u4e86\u9996\u6279\u6cbb\u7597\u6548\u679c\uff0c\u300aNature Medicine\u2019s Research Highlights3\u300b\u4e5f\u4e3a\u6b64\u5f00\u8bbe\u4e86\u4e13\u9898\u3002  \u201cEsperare \u4e0e Pierre Fabre Group… Read More<\/a><\/p>\n","protected":false},"author":556,"featured_media":14123,"comment_status":"close","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1965],"tags":[],"class_list":["post-14119","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-partnerships"],"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/posts\/14119","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/users\/556"}],"replies":[{"embeddable":true,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/comments?post=14119"}],"version-history":[{"count":1,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/posts\/14119\/revisions"}],"predecessor-version":[{"id":14122,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/posts\/14119\/revisions\/14122"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/media\/14123"}],"wp:attachment":[{"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/media?parent=14119"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/categories?post=14119"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.xinwengao.com\/cn\/wp-json\/wp\/v2\/tags?post=14119"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}